Monthly Archives: February 2016

Living with a rare disease

ovicover_29_02_16My first daughter Marilena (from Maria Eleni) was prematurely born (32 weeks of pregnancy) due to oligohydramnios, a few weeks before the Olympic Games were held in Athens in 2004. She had very bad respiratory issues to begin with. She was diagnosed with the syndrome called “OKAMOTO” when she was 2 years old. Until then we were struggling with the “unknown”…

Marilena was born with multiple congenital anomalies including cleft palate, stenosis of the ureteropelvic junction with hydronephrosis, and cardiac anomalies, along with generalized hypotonia, severe developmental delay, and growth failure. The distinctive facial appearance included microcephaly, midface hypoplasia, prominent eyes, epicanthal folds, long eyelashes, synophrys, low-set ears with long earlobe, flat nasal bridge with short upturned nose, open mouth appearance, full lower lip, and downturned mouth. She also has fixation of filum terminale and Hirschprung disease.

During pregnancy amniocentessis showed a normal 46XX karyotype. When she was 2 years old, we did a GR-CGH (Comparative Genome Hybridization) test that was negative. MRI at 3 months showed delay of myelination. Another MRI at 29 months showed normal myelination, normal ventricles and corpus callosum, no malformations.

My husband and I had no idea about her situation and were really shocked on the day she was born. We brought her home after 3 months of remaining in the hospital. I didn’t feel her as my daughter. I didn’t feel like I was her mother… I felt like I adopted her. It was a very strange feeling! But I loved her so much!

READ MORE HERE!

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David Sparenberg’s new book: THE GREEN TROUBADOUR A Source Book of Performance Ecosophy

troubadourii_400David Sparenberg is well known to Ovi readership so any introduction to him or his work will undermine everything he is and everything he has offered and keeps generously offer. In a world full of demands David only offers.

This is a revised and expanded version of a book we published with David exactly three years ago. And as David says: this book is for everyone interested in developing and furthering global green culture—a low tech but deeply soulful culture with a light carbon footprint. The volume is a training manual and source book for actors, actresses, movement artists, oral storytellers, performance poets, green activists, art therapists, educators and eco-psychologists.

Actually I felt that this the right place to add a poems from the book, a personal favourite

LEAD US NOT INTO EXTINCTION
Prayer Of The Animals

Our kin,
who now possess the land
where once we roamed,
plentiful and free,
lead us not into extinction,
but deliver us from the devouring
dis-ease of human greed.

Give us this day
(even unto the seventh generation)
a belonging-place to be
what we are, and in harmony
with All Our Relations.

For yours is the power
to restore or further destroy
the Sacred Hoop of Creation.

Make a warrior’s choice
by honoring unity in diversity
of the Great Mystery.
Let Spirit guide you
back to Creator’s vision-dream:
We Are All One Family.

Now, just download the book for FREE, HERE!

And enjoy reading it!

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The Aesthetics of Benedetto Croce

Ovi publications present Professor Ernesto Paolozzi’s new book “The Aesthetics of
Benedetto Croce”

“It is high time that Croce too, like Vico, be rediscovered and appreciated in his own right, as the other great modern Neapolitan philosophical genius that he is. Paolozzi’s books are undoubtedly a giant step in that direction.”

Download the book for FREE HERE!

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World Cancer Day

World Cancer Day posters

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